The Gregarious (and Guapo) Griffin

[Experience] Light The Night 2011

2011-09-25T11:03:00.000-07:00

My childhood experiences have shaped and impacted my beliefs. Learning to play softball at the corner intersections of Francisco and Sherwin and tying bedsheets to the second floor banister to swing like Tarzan are a couple early memories. From these experiences I have become a believer of a worry free, unyielding, and spirited youth.

Childhood opens the playground to explore, discover and learn. Yet what happens when the childhood experience is not so unfettered? What might keep children from a no-worry, hassle free experience? And further what would be learned from the restraints?

Griffin Maks is my nephew. He was diagnosed with Leukemia and has completed the course of treatment. His early years of childhood are a variety of sorts which forced him to mature and grow well beyond his soon-to-be 6 year old self. Griffin's childhood can be seen curving a path uphill dotted with fevers, sleepless nights, and lengthy hospital admissions. Griffin lives a life that might seem restricted, but you could not tell from the smile on his face and the twinkle in his eyes. Griffin has experienced some trials and many triumphs. These trying experiences are a testament to his growth and his beliefs. Griffin's strength in spirit and his passion motivates and inspires. Griffin uses this inspiration to bring hope and a belief that overcoming a battle against Leukemia is possible. He will be walking with family and friends in The Leukemia and Lymphoma Society Light the Night Walk

Griffin will be walking to raise awareness and funds that will aid cancer research to help find a cure. A cure to fight this disease would ensure a childhood free from the worries of blood cancers like Leukemia. Griffin will be walking tonight September 25, 2011. Come and join Griffin along with the family, friends, and many others who believe in Griffin's mission. We will witness tonight that what we do will impact a better tomorrow.

Here are a few links:

Team Griffin donation page:
http://pages.lightthenight.org/il/ChicagoL11/TeamGriffin

Leukemia and Lymphoma Society Light the Night page:
http://www.lightthenight.org/

Team Griffin images 2010

TEAM GRIFFIN RALLY

2010-09-25T05:05:00.000-07:00

Growing up my sister and I would walk to the park on weekend mornings for cheerleading games. My sister was the cheerleader and I was a mascot. We dressed in the red and white school colors and wore the letter 'M' emblazoned on the front of our sweaters. Back then we would shake the pom-poms and call out cheers exclaiming how our team's power and might would win over the other team. I recall some of the cheers talking about motorcycles and valley talk and went something like,

"..WE'RE GOING TO RIDE ON YOU LIKE A KAWASAKI, VROOM, VROOM, 2-3-4..."

and,

"...A-W-E-S-O-M-E, AWESOME, AWESOME, TO-TAL-LY..."

We cheered on, rain or shine, in hopes our team would win.

Today, my sister and I, will be walking together along with our family and friends in a very important walk. We will be cheering along the route and we may even call out the cheers about motorcycles and total awesomeness.
We will walk to raise money for The Leukemia & Lymphoma Society. That money will aid research and directly benefit those who are afflicted with blood cancers.

My sister Gretchen and my brother-in-law, Jon Maks, have a 4 year old son, Griffin, who is fighting Leukemia. The story of Griffin's fight is a daily battle.

We walk knowing these funds will benefit Griffin. We hope that research will find a cure. We hope we will win this battle. We hope you will join the fight.

The day is here and the LIGHT THE NIGHT WALK is tonight.

So I ask you reader, will you also rally for TEAM GRIFFIN?

These are the details for TEAM GRIFFIN:

1. Location -- Upper Hutchinson Field in Grant Park (SW corner of Columbus and Balbo -- PDF map of Grant Park enclosed); Team Griffin will gather at TENT 1 (the Kids' Tent).

2. Time to gather-- Festivities begin at 5:30pm -- for check-in and last-minute registration; for food and drink (5:30 - 7pm); to pickup freebies and such; to purchase additional Team Griffin T-shirts from Gretchen ($15 for adult, $10 for youth).

3. Time to walk -- the actual walk begins at 7pm and is about 2 miles long. If you're accompanied by people with short legs, you might want to bring a stroller. The walk should be done by 9pm.

4. Weather forecast -- it looks like it will be clear and cool in the 50's, and since we're on the lakefront, it might be breezy, so dress appropriately and wear comfortable shoes!

5. Team Griffin Group Picture -- hopefully we'll get an "official picture", or at least be organized enough to do one ourselves, at 6:30pm.

6. Parking -- there will be parking nearby at the Millennium Park lots (see enclosed PDF map of Grant Park), at parking lots west of S. Michigan Ave, and some nearby street parking.

7. Bring any additional funds you've raised (cash and checks)-- this is the opportunity to get acknowledged for money you raised for the walk; if you have raised $100 or more, you can collect a Light The Night t-shirt at one of the t-shirt tents (this is in addition to the Team Griffin shirt). If you've raised $500 or more, you will get a special pass to the VIP Tent, which will have MORE food, an open bar and other goodies. If you've raised at least $1000, you will get a 2nd VIP pass!

8. There will be a Kid's Corner opening at 5:30pm for a variety of fun activities, including a bounce house, face painting, games, prizes and more!

9. If you're walking to remember a loved one you've lost to leukemia or lymphoma, join others for the Remembrance Ceremony at 6:45pm at the main stage.

10. Call Gretchen or Jon with any questions or concerns.

11. WEAR YOUR 2010 TEAM GRIFFIN T-SHIRTS!

See you there!

Will You Join The Fight?

2010-09-23T11:12:00.001-07:00

2 More Days left until the LIGHT The NIGHT

Will you be joining us?

Come on out tonight for yummy food, great people, and good times.

TEAM GRIFFIN'S KICK OFF PARTY

Thursday September 23, 2010

HOULIHAN'S RESTAURANT
550 W. Touhy
Park Ridge, IL
847.692.6505

6PM-9PM

There will be free appetizers for our bunch

20% of dinner receipts will be donated to TEAM GRIFFIN

Fundraising continues with T-Shirt sales...get them while they are hot!

Come on out and meet GODZILLA he is hungry for your donations.

Raffle prizes a plenty.

Catch Griffin and his family here and the first round of Root Beer is on me!

Make a donation and find Godzilla at the event or link to TEAM GRIFFIN

(GODZILLA creation c/o Wayne Rizal-president CALAMBA ASSOCIATION of ILLINOIS)

The Maks family house is brimming with last minute details for the walk coming up this Saturday. Gretchen and Jon continue their efforts to raise funds for the walk as well as quell any tantrums inevitable among the Maks siblings.

Last night Griffin busy playing hide-n-seek with his cousins and made out to be a very good hider and seeker.

Want to find out more about this little dude?

Meet him tonight and JOIN the Fight!

See you there!

2010 Light the Night Walk Team Griffin

2010-09-13T01:08:00.000-07:00

I remember the day when I was a kid playing endlessly at the park, climbing the monkey bars, spinning in the tire swing, and jumping on the teeter-totter. I played until the park lights started to flicker on and the setting sun cast it's last rays.

Over the weekend, Griffin (my 4 year old nephew), took a break from playing in the park to capture a few smiling images. We had walked a few steps around the jungle gym to find a spot for him to show off his cheeky smile and he said to me,

"I can't walk far because my legs hurt."

I proceeded to find out more about the discomfort that afflicted Griffin, and asked him my cadre of questions to find cause for his pain. Griffin answered my what, where, when, why, and how framework of questions. Griffin described his legs were hurting because he was playing in the park. He confirmed that he did not get bumped at the playground by his rambunctious siblings-Everest, Hudson, nor Kailey. He did not fall off the jungle gym, and he had not been play fighting Tai kwon do with his cousins (my rambunctious kids). Later on, my sister, Gretchen, told me the chemotherapy medication Griffin received made him tired and caused pain to his legs. Griffin left the park not too long after the images were taken and just prior to the debut of the evening sky making it's appearance.

I did not understand Griffin's pain because growing up as a kid I did not have the same experiences that Griffin has to endure. I have stopped asking myself the why about Griffin's Leukemia and find myself asking what can be done.
"What can I do to help my nephew not experience the physical pains after performing activities that children inevitably do growing up?"

On Saturday, September 25, 2010, Griffin and his family plan to attend The Leukemia & Lymphoma Society's (LLS's) Light the Night Walk.

Joining TEAM GRIFFIN will be family and friends helping to raise funds for lifesaving cancer research. I join the fight to find a cure for Leukemia. A disease, in my opinion, that steals away the fundamental right of growing up as a child. I invite you to join Griffin.

Special mention who have and are still helping Griffin Maks and his family, including the Elizabeth Meyer School --Griffin's preschool. On behalf of Gretchen and Jon Maks: A huge Thank You for your efforts. We look forward to a good turnout in support of leukemia research!

RahRahSisBoomBah

2010-07-24T19:00:00.000-07:00

Whether I cheer on the sidelines with pom poms in hand, or I scream and shout from the bleachers, I am showing my support for my team. I know that I can be overzealous shouting out my encouragement to the players on the court. I may stamp my feet and clap my hands. I have been known to stand up from my seat and call out to the referee. I do this to channel the energy that I have, to both inspire and maybe even give that extra "edge" to the players so that a victory will be won. I am preparing to watch my son's basketball game tomorrow morning. My son and my nephew (Everest) play basketball together. Everest is Griffin's older brother.

I plan to cheer for the basketball players tomorrow as I do for my nephew, Griffin. I cheer for Griffin everyday. My cheers for Griffin ride along with my thoughts and beliefs of my faith. I pray to God to keep Griffin well, healthy, and happy. There are other participants on the field who also deserve encouragement. These first string players need no introduction from me. You know them by a first name basis. Jon, Gretchen, Everest, Kailey, and Hudson.

The playing field is set in a number of different places. The fourth floor clinic at Children's Memorial, the house at 60076, and even the car ride to the emergency room. I am shouting out encouragement to

"...keep cool, relax, continue to do what you are doing..."

I am encouraging the players to endure, to sacrifice, and to overcome what may seem to be the hardest hurdle yet to be faced.

The current situation sets the players at different places. Everest is with me for a very early game in the morning. Hudson and Kailey are snug in their bed with grand-parental supervision. Jon, Gretchen, and Griffin are on the way to Children's Memorial. Griffin's white blood cell count has been trending on a downward slope. This situation challenges Griffin's body and makes it hard to fight off infections. Griffin had been monitored by the Md's for the past week plus a few days. Gretchen and Jon were given instruction to come to the hospital if Griffin developed a fever.
I had talked to Gretchen over the phone on Saturday evening (I can not change the time entered/displayed for this post). She spoke to me with tears and told me her "mother's instinct" and interpreted her gut feelings. She was preparing and packing in case Griffin did indeed show more objective signs of fever. I received the call Saturday night (before midnight) they were in fact on their way to the hospital.

Griffin has one more year of treatment and must face every challenge with strength courage, and faith. As I sit here in front of my monitor I invite you, reader, to join me on the sidelines and Cheer your heart out for the Home team. We can do a virtual wave, we can whirl a dervish dance, we can scream from the rooftops, we can send our positive energies, we can pray. However you choose to cheer, encourage, uplift and/or inspire...let us all tip the scale in Griffin's favor. 1-0.

Man & Woman of the Year

2010-05-20T15:27:00.000-07:00

The beautiful faces that you see belong to Griffin and Rose. You have been hearing the story of Griffin and all his 'going-ons' from word of mouth, Gretchen's FB, and or have been eyeing glimpses of him here and there.
There is more to tell you about Griffin and his recent follow up visit to Children's Memorial for a routine blood work up. Results are still pending, but the lab result of importance are Griffin's liver lab values. More updates to follow when available.
It was by special request to update the blog and give special mention to Rose and her mission. Rose is a survivor of NHL and her story can be found here:

http://www.roseabovecancer.com

The benefit for Man & Woman of the Year will be tomorrow May 21, 2010.

Congratulations to all who have supported LLS. To all the candidates in the running for Man & Woman of the Year, it was not only with the donations raised, but with your blood, sweat, and tears that you put a happy smile on Griffin's face.

On behalf of Griffin Maks and his family, Thank you!

Turn on the Light

2010-05-12T16:18:00.000-07:00

The cogs are turning and the switch has been turned on. Imaginary light bulbs are above mine and Gretchen's head at the making of this post. The kids are running around us asking us for snacks, asking us to fix their toys, and tattling on the one that seems to cause all the commotion...Griffin. I know the latest post was way back when...but keep a look out for more information. We are here, and I know you are too.

Light the Night

2009-09-23T19:33:00.000-07:00

"Whoa, Where have you been?" "What have you been up to lately?"

Have you heard these words before when you have not seen a friend in awhile? And yet whatever the reasons are that kept the relationship silent, it is as if no time has passed after the greetings are said, and conversation picks up right where it left off.

So here he is. In the following images you may not recognize him right away, he is there, he does not look sick, ill, or with cancer, because his smile, his scowl, his laugh, keeps him looking like all the other kids around him. You can even see the family that supports him and wakes up with him every late night because he is so hungry from the steroids, he has to eat something.

The Maks family have been growing, learning, and continue to journey on learning with every challenge that is presented. So what is Griffin up to now? Well, with only 3 days left, the Light the Night Walk will take place. Along with his family and friends, Griffin, will embark on another part of the journey. This cause will help to raise funds to continue the fight against and find the cure for Leukemia.

You need more info?
Follow along on the team page:
http://pages.lightthenight.org/il/ChicagoL09/TeamGriffin

Catch the people involved in fighting Leukemia and the efforts that are being done. From the "Hoops for a Cause" event to the "Festivus" they are all there both in body and spirit.

Follow the people who have met there goal and are continuing to raise more money.

You want to join?

Come along, the team has won a tent, pizza, and route markers with Griffin's mug greeting the walkers along the way.

You want to walk?

Sign on up and welcome to the cause.

So what else do you want to know about Grif?

Let's see, there was the Florida road trip in April for a program called

"The Lighthouse"

A retreat for children with cancer and their families and a program run by many dedicated volunteers.

After Florida the Maks arrived in fashion just in time for Easter.

Summer was filled with all the summer glory, sort-of-hot weather, ice cream, water play at the beach, at Millenium Park with the cousins, Michigan jaunts to the Dunes and even a car ride to Canada.

Yes that is right Canada. The Maks' drove over 1,000 miles one way and with 4 kids under 7 years of age and a California uncle Ashlin in tow with stressed out anxious parents behind the wheel. The final destination was made in Mont Tremblant, Quebec Canada.

From the time of the last post in February to now, Griffin, has made a couple unscheduled visits to Children's Memorial Hospital. He was treated for a sort of maladies, including a bout of flu. He has recovered and has been able to start preschool with the rest of his peers.

At the time of writing this post, late night Wednesday, Griffin will have class pictures come Thursday morning and will then go to a scheduled visit to Children's Memorial for spinal tap and medications.

Please continue to pray for Griffin and his family. Send your positive thoughts his way.

You just want to know more about Griffin? Well, until next time.

Griffin with Fever

2009-02-09T20:07:00.000-08:00

Update 2/10/2009 2:20Pm

Griffin was admitted to the 4Th floor Oncology floor into an isolation room He was started on Mirapenem (antibiotic), Intravenous fluids, and continuous pulse oximetry (a measurement of oxygen saturation in the blood- basically if numbers were low then supplemental oxygen would be needed).

The doctors told Gretchen and Jon chest x-ray results showed possible mid/lower lobe infiltrate. Other differential diagnoses included atalectasis. The plan is to have Griffin go home. Gretchen and Grif are waiting for Jon to pick them up from the hospital. Griffin was also found to have an increase in his blood count which is encouraging because then he will be able to receive chemotherapy, but not until this infection is cleared.

Continue to keep Griffin in your prayers, and Thank you for your comments.

With a temperature of 103.0, Griffin is on the way to Children's Memorial Hospital. Griffin was observed to develop a 'croupy' sounding cough and doctors were immediately notified by Gretchen earlier in the day, and ordered to monitor Grif for fever. Jon and Gretchen are at Griffin's side and the rest of the Maks family are at home with MamaRita. Updates will be posted as soon as Gretchen calls back with results from the hospital. Please continue to keep Griffin and the family in your prayers.

Send your kisses

2009-02-08T23:06:00.000-08:00

Hi everyone,

Thank you for checking out the blog. Keeping you posted on the "going's on and the what's happening" with Grif. The big question I get asked is, "How is Griffin doing?"

Griffin remains at home, and continues to be on lock down because his immune system is compromised. His blood count continues to remain on the low end of the parameters and therefore he has been on hold from receiving chemotherapy. Griffin's plan of care consists of a bone marrow biopsy on Thursday to definitively determine if the chemotherapy treatments will continue or if he is in relapse. Without saying, Gretchen and Jon remain hopeful and optimistic of the results. Griffin is noted to be in good spirits, but is also stir crazy. The boy is always hungry and continually eating. Talks of locks on cabinets have been verbalized because he is not restricted from eating at certain times. (During intake of chemo meds Griffin was restricted from eating 2 hours before and after eating due to high risk of vomiting of medication).

The next steps will be determined after the results of Thursday's biopsy. Please continue to pray and send positive thoughts Griffin's way.

Here is an image of the family giving love and kisses to Griffin.

Griffin is out

2009-01-28T15:00:00.001-08:00

Just to give you an update that Griffin is now out of the hospital. He had to stay a few days for observation of his neutropenia and fever. His blood counts are still low and his chemotherapy is on hold. Since being discharged Griffin has been on lock down in the house. Griffin is scheduled to have his treatment tomorrow, if his counts are high enough he will have his chemotherapy tomorrow and a follow-up with the oncologist in the clinic. Thanks to all who have told me that they have been reading the blog. Please continue to pray and send your positive energies Griffin's way.

Griffin Admitted to Children's

2009-01-18T22:56:00.000-08:00

Griffin was brought into Children's Memorial Sunday night 1/18/2009 because of high fever of Tmax- 102.7 It is determined that because of a low neutrophil count he will also be admitted into the hospital. Griffin is no stranger to the emergency room. This will mark his second visit of the week. On Thursday night 1/15/2009 Griffin was brought into the emergency room with a fever of 103.5. He was later released early Friday morning.

Please continue to send your prayers and positive energies to Griffin and the family. The whole experience has been emotionally and physically stressful for both Gretchen and Jon. It has been equally stressful for the caregivers watching over Everest, Kailey, and Hudson. MamaRita, Grandpoppy, and Grandma Aida continue to provide a safe, caring, and loving environment.

Updates to follow, so far as of this post 1AM, Gretchen and Griffin have been admitted onto the hospital floor. Gretchen will continue to stay at Griffin's side while Jon treks back home.

Comment here and/or send your thoughts and prayers (Also worth mentioning, sing a Birthday tune to Gretchen - today is her birthday).

Happy Birthday!

2008-12-05T02:41:00.001-08:00

Happy Birthday Griffin!
Your age is written in single digits, but your life experiences suggest one whose years have seen beyond the 'Golden Days.' Will you remember this particular time? I think back to my earliest memories and remember the times when I was the most happy.
Your path seems fraught with many twists and turns, and I come to my own conclusion that your memories will be varied. I do not doubt you will remember these times.

Along with each twist and turn your mother has made sure to offer you only the best. I know your mother, she would want only the happiest of events to balance out the not-so-choice 'offerings.' With that being said, I ask you to remember deep in your heart the smile that you wore the night of your 3rd Birthday Party. Here are some pictures that captured the day you shared with Kailey and Hudson. The extravaganza of your birthday culminated at the Carousel of Elk Grove Village. Your birthday song was sung to you in front of your carousel cake. So many sights that late night to make one think that you partied like a rock star.

5th Stage Starts Now

2008-10-21T13:23:00.000-07:00

With cool temperatures underway, the flu also finds it's way into homes and lurks waiting for the right host. You can be for sure that Gretchen and Jon maintain strict hand washing techniques whenever entering the Maks' home and engaging with the Maks' children. At the beginning of this week (October 20, 2008) Griffin visited the Children's Memorial Hospital for a routine spinal tap and medication administration of chemotherapy. He had underwent the spinal tap procedure, but due to complications of possibly hitting a blood vessel the spinal tap was canceled. The spinal tap was rescheduled for next Monday and at that time chemo meds will be administered via the spinal fluid. Griffin returned home by Monday afternoon.

Griffin has been hanging in and around the house with his siblings. What else would a soon-to-be 3 year old be doing? Over the weekend, he helped his Papa Jon decorate the house with Halloween decorations and enjoyed the crisp autumn weather. Here are a couple images of Griffin and his siblings enjoying the autumn leaves.

Albeit, his rash remains since his admission into the hospital (a couple weeks ago), and his hair is disheveled in the front and thinning around the crown, his bright shining smile remains.

Griffin continues to follow the doctor's schedule and medication regimen. He has officially entered the 5th phase of his medication protocol, and is scheduled to visit the hospital once a month, for the next 3 years. At these scheduled visits, Griffin will undergo a spinal tap and chemotherapy administration. The doctors have told Gretchen that Griffin should not lose any more hair, and a much needed appointment at Kid Snips has been scheduled.

Listening to Gretchen's voice talk about the plan makes me feel a relief, kind of like, "Whew, Thank God, we have been able to get this far." And I do Thank God. My sister, Gretchen, has always had the penchant for creating a 'light goodness' to issues and factors and stories. But I can only imagine what lies behind those words, because if this were me and I wore my sister's shoes, I would want to scream my lungs out and exclaim,

"Why? Why my Griffin?"

There are no feasible answers that can allay my fear nor those of my sisters. But I continue to pray that God continues to give Gretchen and Jon the strength. Strength to get on with their daily lives in light of all of 'This.' I continue to pray that Griffin's body remains strong despite the fact that these medications that can eradicate the Leukemia may also destroy parts of his body. I continue to pray that Everest, Hudson, and Kailey will continue to thrive and know that Love surrounds all of them.

Please continue to send your positive energies for the Maks Family. Continue to pray for Griffin and his family.

Fever & Admission

2008-10-06T03:55:00.000-07:00

Griffin's weekend was spent in the Children's Memorial Hospital after he developed a fever. Griffin's temperature started at 100.9 and began creeping up to 104.7. The high temperatures guaranteed a visit to the Emergency Room. Jon and Gretchen did not delay transporting Griffin. By the time Griffin was 101 he was en route to the hospital.

Griffin was seen in the emergency room and presented with fever and a generalized red rash on most of his body. He was in the ER for about 5-6 hours before being admitted into the isolation rooms of the oncology unit. On the floor, a number of doctors examined Griffin, and it was determined that he would need intravenous fluids and observation.

Jon and Gretchen remained at Griffin's bedside. Hudson, Kai, and Everest remained with MamaRita and Grandpoppy, and Grandma Aida. Griffin received 1 unit of a blood transfusion prior to leaving the hospital. Talking to Jon this morning he stated that Griffin slept through the night.

Please continue to pray for Griffin Maks and his family.

Update status post LP & Cytoxan

2008-09-26T03:12:00.000-07:00

Gretchen called about 11:35 am on Thursday morning to report Griffin's LP (lumbar puncture) procedure was over. Griffin was able to get through the ordeal with no complications. His face was red all over from screaming and crying and he may have some broken facial capillaries.

Griffin had been at the Children's Memorial Day Hospital for the Cytoxan infusion. There was a tiny blip when Griffin's port-a-cath needle became disconnected while Intravenous fluids were infusing, but no harm was done. When all things were said and done the family got home about 8:00pm.

Talking to Jon last night he mentioned that Griffin enjoyed introducing all of his friends. Griffin had no reservations walking up to staff and/or patients. Griffin is a "little celebrity" over at Children's.

Griffin was up throughout the night with nausea and vomiting. A common side effect of the chemotherapy medications. Despite the administration of oral liquid Zofran (a medication for nausea and vomiting), Griffin continued to have waves of episodes and dry heaves.

Griffin's siblings are staying with grandparents and should return home by today.

Please continue to pray for Griffin and the family.

Have you been waiting?

2008-09-24T11:35:00.000-07:00

Hi Folks! Yes, we are still here. A lot has been happening for Griffin and family. The Maks' are busy acclimating to their jam-packed schedule. Markings on the calendar indicate the start of school for Griffin and his siblings. There are also reminders for soccer practice and games, violin lessons, Tae Kwon Do practice, and hospital visits and procedures.

Since the last posting Griffin has had treatments that follow the planned schedule. Not to say that the events that have passed are not important to note here on the blog, but Gretchen and Jon are super busy.

Griffin has been attending classes at the local park district Monday through Wednesday for two hours each time. He enjoys the playtime with his siblings and playing with the tool set play area. He especially enjoys the different art projects, playdoh playtime, and floam.

Griffin has continued his involvement with all of his therapies. Gretchen stated,
"All the outside daily stimulation/ socialization helps keep a constant state of order." Griffin and his siblings are not only learning the valuable lessons of play, but also understanding the concept of rules and continuing an established routine.

The blog has not been updated for a long while and we Thank you for being extra patient. On Thursday, September 25, Griffin will be on his 29Th day of the Standard Delayed Intensification Phase. This is the 4th phase of Griffin's treatment.

Tomorrow Gretchen and Jon will be at the hospital for Griffin's procedure. The first part of day Griffin will have to undergo yet another lumbar puncture (LP) also called a spinal tap. This LP will be done without general anesthesia. Usually this procedure with the anesthesia takes about 2 hours, but Griffin has to undergo a new chemotherapy regimen. The medication that Griffin will have to receive is called Cyclophosphamide (Cytoxan). The infusion time for this medication is planned to take 6 to 8 hours.

In addition to this medication, Griffin will also be receiving a slew of other medications. They include:

Thiogiane (sp?)via the port-a-cath.

Cytarabine via intravenously and then continue daily at home as a deep muscle injection for 5 days.

Griffin may have to stay overnight at the hospital depending on the outcome of all the procedures.

On a side note, Griffin's hair is beginning to show signs of thinning. His hair may look disheveled and unruly covering his eyes, but Gretchen and Jon are nixing the idea of giving Griffin a trim or cut. They are keeping his hair until it starts to fall out.

Gretchen and Jon are very thankful for all the e-mails, cards, and phone calls. They are also thankful for the gifts of toys, books, photo albums, and food.

The Maks Family ask for continued prayers and positive energies.

Together as One and Hand-In-Hand

2008-08-29T20:56:00.000-07:00

The summer days are dwindling down and the Labor Day Holiday is upon us. The August summer nights make for sleeping with the windows open a pleasant and comfortable environment. But in the Maks family household comfort is a thing of the past and I quote from Jon, "because Griffin had to vomit three times because of the chemo meds."

Thank you to all the loyal and supportive followers of the Griffin Maks blog for being patient and checking often for updates. Here is what has happened:

August 21, 2008

Griffin's neutrophil count was very low hitting numbers of 200, with normal limits above 1000. griffin visited the Children's Memorial hospital accompanied by his older brother (kuya Everest). Everest was up close and personal for the second time, and experienced the pain and hardship that his younger brother Griffin has to endure. This particular week was the last of the Third Phase. Griffin received his intramuscular ERWINA injection, and 6MP, and Methotrexate.

Following the chemotherapy protocol Griffin had a week off from all chemotherapy medications. Which brings us to August 28, 2008. This date is the first day of the Fourth Phase called Delayed Intensification. As Gretchen explains, "this is the brutal phase" From what the doctor describes this is the phase that Gretchen and Jon may have to anticipate blood product infusions, hospital stays due to fevers, and adverse reactions to new chemotherapy medications.

August 28, 2008
On this particular day, Griffin was accompanied by his uncle, Tito Ashlin. Ashlin also saw first hand the procedures that Griffin must receive in order win the battle against Leukemia. As Ashlin explains how he felt, he states, "Overwhelmed." Ashlin also observed the different families also in the waiting room who may not be there for the same reason as Griffin, but looked sick. Ashlin continues to describe the experience as, "Everything was all new." On the lighter side, Griffin felt proud to introduce his uncle to all of his hospital friends, doctors, nurses, staff, and some young patients.

Griffin received a lumbar spinal tap with methotrexate intrathecal injection. Vincristine and Doxarubicin infused into his por-a-cath. Griffin also started the dreaded Decadron. It's the "make-you-insanely-hungry-and-mean" drug.

Gretchen and Jon are preparing for the inevitable changes of Griffin's outward appearances. For example the Doxarubicin can cause hair loss, mouth sores, and long term heart damage. A romp through Evanston's Northwestern University Campus allowed for memorable images of the Maks family unit. Throughout this harrowing journey they travel the path laid out hand-in-hand.

Please continue to pray for Griffin and his family. Say hello and leave your comments for Jon and Gretchen, this keeps their spirits high.

Griffin and his Gal Pals

2008-08-15T19:55:00.000-07:00

Griffin has been out and about with his personal entourage of not only one but two beauties watching over him and his siblings. Amy M. and Michele Joy M. were on hand literally to give Gretchen a hand with Griffin's daily appointments. The events involving the two lovelies spanned over a few days, but let us just say they are probably ragged tired.

No task was too big to handle for this dynamic duo. The girls offered extra hands, eyes, and extra hugs which in turn helped Gretchen and Jon immensely, and thus helped Griffin. I could list all the things that they did, but there is not enough room. Like it isn't hard enough to take care of a 6 year old (Happy Birthday Kuya Everest!) and 2 1/2 year old triplets, I can only imagine, I am sure that what these two gals did helped to get the job or jobs accomplished.
Thank You Michele Joy and Amy, you two rock! Get some rest!

WTMX Fundraiser for Children's Memorial

2008-08-08T12:39:00.000-07:00

Hey everybody! We just wanted to plug the 9th Annual Radiothon for Children's Memorial Hospital! This is the hospital that Griffin attends weekly, and will be attending for the next 3 years. Proceeds go to buying crayons, play-doh, coloring books, et. al. in addition to medicine and staff.

More information here:

http://www.wtmx.com/home.php

or tune your radio to 101.9 and listen in!

A Night in the Life of Griffin

2008-08-04T18:27:00.000-07:00

The night routine started with the usual rituals: reading to them, baths and pajamas, and getting them into their slumber. Gretchen put Hudson, Kaily, Everest and Griffin in their rooms and with some outbursts, they finally fell asleep. Another long day, Gretchen sighs as she puts away some of the clutter.

In the triplets room is Hudson and Kailey. Hudson is balled up in his crib breathing steadily. Kai-Kai sprawled on top of twenty of her favorite stuffed animals in her crib. Everest is asleep on mommy and daddy's bed. Griffin in the same room as Kuya Everest. They both love to fall asleep in front of the T.V.. Its a bad habit, Gretchen thinks to herself, I have to break them out of this. But, this is how it needs to be for now. When Griffin goes to the hospital for medications or an overnight observation, the television is what comforts him in the strange room. These small conveniences become Gretchen and Jon's salvation when their emotions are close to their limits.

Gretchen looks at the clock and sees that it is 935pm. She takes a mental note that in about twenty minutes they will start. Nightly, Jon and Gretch give Griffin his chemo medicine. It has to be at night because when he's awake, he fights it. They've tried a hundred ways to trick him into taking the medicine including gummy bears and juice. All attempts end horribly. Griffin defiantly spits it out or vomits or fights with all his strength to not swallow. They were told by the doctors that this medicine tastes exceedingly horrible. Not to mention, it makes the kids feel very sick. Kids learn to associate this yucky stuff with feeling yucky. Better to just feed it to Griffin at night, when he's too sleepy to fight.

It is now 10pm. Gretchen calls out "Jon it's time."

Gretchen watches as he puts on his rubber gloves. Taking his cue, she puts on her gloves. They must wear gloves to protect themselves when handling this stuff because it is highly toxic. Jon explained to Gretchen many times why it is so bad and if it gets on your skin it will make you very sick with stomach ache and dizziness. Sadly I have to feed this poison to my son. Gretch quickly pushes the sad thought out of her mind.

Jon and Gretch switch off evenings to make the concoction of different medicines. It is Jon's turn tonight. Jon talks himself through the concoction. "A tablet of 6-MP. One tablet of Prevacid to aid in preventing the massive stomach irritation or ulcers due to the chemotherapy. Decadron. A little bit of water." Jon shakes well.

They both go into the bedroom. They see Griffin lying there peacefully. His infant snoring and the audio from the T.V. are the only sounds in the room. The bluish light from the television allows them to see Griffin's crib. He must be in their room because he needs to sleep by them in case he has a reaction. They want to be there to hear him and quickly nurse whatever needs he has. With Griffin in their room they spare the kids in the other room from sleepless nights hoping to give even a little normalcy to their lives.

Jon lifts Griffin out of the crib and lays him on a makeshift bedding on the floor. This is strategic because they need the wrestling room. Jon begins to change his diapers. The movement rouses Griffin and he begins to whine. He knows what is coming. After his diapers are changed, Jon lays Griffin in Gretchen's arms.

Sleepy and agitated, Griffin says "Papa no..." Griffin's whining is getting louder. Gretchen begins to tighten her hold around Griffin. Jon puts the syringe containing the concoction in Griffins mouth. "NO!!" Griffin starts to fight. "No," he gurgles. He hears his mommy saying "Its ok Griffy, its ok." He is crying loudly now and fighting to free himself from mommy. Jon has to slowly inject the medicine so Griffin can swallow it. If they put too much, he'll spit it out or choke.

"Swallow!" Jon tries to be strong.

"You got to do this now so you can go back to sleep" comforts mommy.

Griffin is fighting hard and crying loudly. "No, no, no." Gretchen tries her best to keep him calm. There are times when he works himself up so much that he vomits it all up. On those nights they have wait until he falls back asleep, until he's calm, and try all over again. One night, it took them three tries and woke up the others. That was a hard night.

They go through a flood of emotions in these few minutes that seems like 100 years. They are drained by the emotions of frustration, anger at the disease, fatigue, sadness for their son, asking God why? But they must force him to take the medicine. "You have to drink it!" Griffin must drink this poison so he will win over this...

Finally the last of it is swallowed. Griffin is whimpering in bed falling back asleep. He is back in his crib. Mommy wipes his face while Daddy cleans up the bedding and wipes. Thank God. The medicine was administered successfully. Gretchen thinks over the past few nights. Last Tuesday was one of the easier nights. Tonight I would gauge it at medium difficulty, she thinks to herself. Tomorrow night we'll do it again. Lord, please, don't let tomorrow be like last Friday. And she looks ahead thinking this will be our nightly routine for the next three years, until 2010...

Severe allergic reaction but back on track

2008-07-23T20:21:00.000-07:00

Last week was a difficult week. The next step in Griffin's treatment was to be a dose of pegaspariginase. On the left is a photo captured by Mommy of Griffin happily sitting on an elephant in Children's Hospital's atrium. Shortly after this photo is when the allergic reaction to pegaspariginase hit.

The allergic reactions to the medication put Mommy and Daddy in a whirlwind of worry because of Griffin's already compromised immune system. The hospital admitted Griffin to control the reaction as well as to observe him.

Griffin is at the day hospital, fast asleep. He's receiving multiple emergency IV medications to treat the allergic reaction -- including benedryl, epinephrine, and solumedrol. His vital signs are constantly monitored, especially his respiratory rate. A possible complication includes respiratory arrest (he might stop breathing) or cardiac arrest (his heart might stop.)

Overnite at the main hospital for observation. He was responding to the emergency treatments, albeit slowly.

The doctors consulted and decided on the substitute medication. We have already started with the new schedule:

July 17 -- Jon went with Gretchen and Griffin for his 1st injection of Erwinia-- this is the medicine that has replaced Pegasparaginase (the one that caused the severe allergy). Griffin saw his friend Brooke, who also suffers from leukemia. Everything went well.

July 21 -- tolerated the 2nd Erwinia injection; no complications!

July 23 -- receiving 3rd Erwinia injection

July 25 -- 4th shot of Erwinia

July 28 -- 5th shot of Erwinia

July 31st -- 6th shot of Erwinia; also to receive IV vincristine and intrathecal methotrexate (injected into his spinal canal); he'll get labwork.

Recovered from the allergic reaction, Griffin's treatments are back on schedule! Here is Griffin climbing "the Dragon" at Old Orchard. He's still playing and feisty despite the weekly IV chemotherapy and daily oral chemotherapy every night. And yes, his hair is still real!

Griffin's Port-a-Cath

2008-07-08T11:26:00.000-07:00

JULY 3, 2008

A couple of updates to note. Griffin's days at Children's Memorial continues to be Thursdays, and with the July 4th holiday the same day hospital was double booked. This particular day was super busy for all the workers and for Gretchen and Griffin. Fortunately, Ninang Weng and sister Kailey came along for the ride and helped keep time moving. Kailey had so much fun playing with her brother Griffin and looks forward to the next time she is allowed to visit.

Griffin and family enjoyed a couple of family bar-b-ques and birthday/graduation celebrations over the weekend. It was during this time that Gretchen and Jon noticed a protuberance from Griffin's Port-A-Cath site. It seems that one of Griffin's stitches is 'peeking' out from under the skin. The cath site looks more like a nuisance than it is since Griffin is not complaining of pain nor itching. The skin and area around the site continues to maintain it's integrity, and no infection is observed. Check out the next couple images.

JULY 7, 2008
Gretchen and Jon maintained close observation of Griffin's site and had it checked out at the day hospital this past Monday July 7, 2008. Per a surgical resident the Port-A-Cath is in no need of revision nor the suture need not be removed.

After the visit to the hospital Griffin remained his usual 3 year old Griffy-self and enjoyed a popsicle with his brothers, sister, and cousins happy to see him back home.

Talking to Gretchen today, and it seems another stitch/suture is 'peeking' out from under Griffin's skin. Gretchen and Jon continue to communicate to the staff at Children's and will continue to monitor Griffin.

As for Griffin's medication regimen, decadron has been added to the mix of oral chemotherapy medications and there is no 'scheduled' visit to the hospital this Thursday. Please continue to pray for Griffin's health and do not forget to leave your comments.

Griffin Discharged

2008-06-29T07:55:00.000-07:00

Griffin went home by lunchtime Friday afternoon. After observation throughout the night at the hospital, the doctors deemed him ready for discharge. No visible signs were noted from his allergic reaction. If there was anything that he brought back from the hospital it was his smile and laughter. Griffin was happy to be at home with his siblings Kailey, Hudson, and Kuya Everest.

Griffin admitted to Children's

2008-06-26T18:32:00.000-07:00

In celebration of the Summer time Griffin has been able to enjoy more public outings. His face has graced a couple family gatherings and picnics. It would be hard to pick Griffin out from the gaggle of kids that swarm the playground. His illness is not readily seen. Even if Griffin were laying down in the Same Day surgery beds one would be hard pressed to know that Griffin was the patient. Amongst his peers he is just like any other boy or girl laughing, smiling, running, and crying out with joy. He has no reservations when it comes to playtime and doing all things fun. Why should he have to worry? And what would Griffin have to worry about? Of course when it comes to Jon and Gretchen, the day's activities are fraught with 'What Ifs." What if there is someone who is sick at this gathering? Or What if Griffin gets hurt while playing with the other kids? What if Griffin becomes ill?

The weeks have passed and many events have taken place. Griffin's schedule remains planned out to visit the hospital every Thursday. The Consolidation phase for Griffin has been a 'coasting' time. The type of procedures that Griffin has had to endure in the initial weeks has decreased for this phase. So here is a recap of the events since June 5, 2008.

June 12, 2008

Big brother Everest accompanied Griffin for his weekly visit. Everest had already known about Griffin's illness. Everest showed Griffin compassion and understanding and continues to do so beyond what an almost 6 year old should have to know. But on this particular Thursday Everest was able to truly grasp the idea and see what Griffin has had to endure all these weeks. Everest had to roll out of bed at the crack of dawn, like Griffin, to travel to the Children's Hospital. Everest met some of the hospital staff and saw first hand the different events that take place for Griffin. Everest enjoyed the day and commented on the little 'extras' that Griffin experiences. In reference to the wall mounted television above each Same Day hospital bed, food service, and video games, Everest commented,
"It's like a hotel in here"
Everest also said,
"This is the good life."

The day was long and both Griffin and Everest's patience was wearing thin, but thankfully to the efforts of Ninang Rowena who also accompanied the crew, their was an extra eye to keep the kids on track. Check out Gretchen's images of that day.

June 19, 2008
On this Thursday, Gretchen followed the advise of the hospital staff, and arrived extra early. The procedure that Griffin was to receive was planned to happen early and Griffin and Gretchen had planned to be home before lunch. Unfortunately, there were emergencies with other patients in the procedure suite, and Griffin was bumped back on the schedule. The day was long and Griffin was very, very hungry, and probably cranky. Fortunately, for Griffin and Gretchen, Tita Julie, brightened up the day and helped bide the time until the day was over.

June 26, 2008
Three weeks have gone by since the last posting. I just got off the phone with Gretchen and have news to report. Griffin was scheduled to have blood draws and injections of a medication called Pegasperiginase. The protocol after administration of this medication is to monitor the patient for possible allergic reaction. So after the medication was administered, unfortunately, Griffin did present with an allergic reaction. Immediate medical attention was given to Griffin in addition to medications to counteract the reaction. Griffin has been on doses of benadryl, solumedrol, and epinephrine. He was currently admitted this evening and Gretchen has been by Griffin's side throughout all the events. Tita Julie was also present during the day and was first on hand to observe Griffin's initial allergic reaction. Jon has been busy getting the kids ready for bed with dinner and a bath. He is on his way to the hospital, and MamaRita will be on hand with Everest, Hudson, and Kailey.

Gretchen and Jon want to Thank Everyone for the cards, notes, prayers, and positive thoughts. Please continue your prayers for Griffin's return home.

Consolidation Phase Begins

2008-06-05T14:50:00.000-07:00

Today Griffin went to Children's Memorial Hospital for another set of procedures. Griffin had a bone marrow aspiration and biopsy, a spinal tap with intrathecal chemotherapy of methotrexate, an injection of pegasperiginase, and vincristine through his port-a-cath. Would you think that this big guy would still be smiling? Of course he would especially when Ronald McDonald's is in hand after the procedures were done. Not to mention the atmosphere in the hospital maintains to keep the patients occupied and happy. Around the corner of every hallway there are little surprises and treats. I mean just signing up at the front desk of the day hospital, Griffin receives a sticker. After that he has to get vital signs recorded, that means he gets a Sesame Street Ernie beanie figure. Getting his blood drawn, he gets more stickers. Sitting in the waiting room he gets crayons and a coloring book. There is even a play/arts room that the patients use to help distract while enrich their minds all led by volunteers and dedicated staff. No complaints here. Just a whole other environment to keep the young kids entertained and their minds off their illness. And it helps a whole lot.
Griffin had a long day with only minor outbursts and crying. He remained behaved and some staff thought he was a brother of a patient. He maintained a smile throughout the day. After taking a siesta during the car ride home, Griffin was greeted by his big brother and GrandPoppy. Please continue to pray for Griffin and his family. And do not forget to leave your comments.

Griffin's mom and dad

2008-06-04T14:17:00.000-07:00

You already know them. Gretchen and Jon. With the blink of an eye the lives of Gretchen, Jon, and their family changed. They soldier on everyday. Their goal is to help their son, Griffin, defeat Leukemia. This is a war against an enemy that will be battled on many occasions. Griffin's doctors plan for three years of chemotherapy. Every step forward is one towards victory. The battles will be fought at home, at the hospital, and also from within. Tomorrow's battle will be another scheduled bone marrow biopsy and spinal tap with the administration of chemotherapy.
Are you ready to help fight this war? Keep Griffin in your thoughts and your prayers. Many thanks of gratitude to all those that have sent gifts, cards, and emails of hope, strength, and prayer.

MRD results

2008-06-02T11:47:00.000-07:00

The MRD results are negative. Gretchen asked the doctor what that means and it shows that Griffin has less than 1% of Leukemic cells. Griffin will still continue with the consolidation phase. Here are some more pictures from Gretchen and Jon.

OP & P

2008-06-02T08:43:00.001-07:00

Since Wednesday, May 28, Griffin came home from his procedure tired and sleepy. There was a slight bump in the road prior to the procedure. Do you want to hear about this 'bump'? Should I be ambiguous about the incident or should I be specific and use names? But what is the point of bringing up the past? The most important part of the day was bringing Griffin back home. I should just say that the person that failed to follow Operational Policy & Procedure will never fail again.
On Thursday evening Griffin developed a fever, rapid respiratory rate, and difficulty breathing. Griffin's temperature was high enough to qualify for a visit to Children's Memorial Hospital. After numerous blood tests, chest x-rays, and physical examinations, Griffin was diagnosed with pneumonia. He was given intravenous antibiotics and sent home. The doctors say he developed pneumonia due to being intubated for his procedure and/or possibly because his activity level is at a minimum. This reason is the proper condition for allowing fluid to collect in his lungs. Griffin's medications make him tired and he tends to lay down most of the day. If he has to travel he sits in his stroller. Since being diagnosed with pneumonia, Griffin's siblings have been sent to stay with grandparents until Griffin is no longer contagious.
Today Jon and Gretchen are waiting for results from the bone marrow biopsy. Three different tests are performed on the bone marrow. One test is a visual test. The second test is a flow cytometry test that is used to measure the amount of DNA in cells, specifically it is used to to determine how well a cancer may respond to a particular therapy. The third test is called MRD or minimum residual disease. This latest technology is a highly sophisticated tool that looks for any remaining cancer cells, even single cancer cells. Ideally the results that Jon and Gretchen are waiting to hear is an MRD value of 0. This would be suggestive that the cancer is responding to the chemotherapy and it also means Griffin has a higher chance for survival.
This Thursday is the second phase of Griffin's chemotherapy. The consolidation phase. This phase kills the rest of the leukemic cells left. Every Thursday this month Griffin will have a bone marrow aspiration and biopsy and spinal tap. The weekend has been rough and coping with Griffin's illness has been hard. Gretchen and Jon have started to read the blogs of other families who also have a child with Leukemia. Reading the blogs offers support and then also can be heart wrenching when reading about the children who lose the battle for life. Jon and Gretchen thank everyone for the many gifts, food, cards and emails with words of encouragement and support. Please continue to pray for Griffin and his family. Check back for the update on the MRD value and more pictures being sent from Gretchen and Jon.

Griffin is scheduled at 8:45AM

2008-05-28T05:12:00.000-07:00

Gretchen and Jon left for the hospital at 6AM for the scheduled appointment at 8:45 this morning. Griffin is H-U-N-G-R-Y. He had to stop eating since last night. The port-a-cath will be placed into the upper region of his chest. Left or right side is still to be determined. During the time that he is under general anesthesia he will also be receiving a bone aspiration, a spinal tap, and methotrexate placed into the spine. Direct all your energies to defeating 'this Monster.' Please continue to poor your prayers out to Griffin and his family. Pray that the Doctors and staff are successful while working on Griffin. Pray that Jon and Gretchen continue their endurance and strength. Pray that Griffin comes home safe and with minimal discomfort.

Decadron

2008-05-27T03:35:00.000-07:00

Think of this word when you view the images of Griffin. The first couple of images are of Griffin in the beginning of May after initial diagnosis of his Leukemia and treatment.Decadron also called Dexamethasone has many uses in the treatment of cancer. This medication is classified as a glucocorticosteroid and plays an important role in the treatment of Leukemia. There are a list of side effects that can be caused by taking the medication. The first few side effects include, increased appetite, irritability, and difficulty sleeping.
There are times when Griffin eats with so much gusto that you want to say to the guy, "Hey don't forget to breathe." I know it sounds too extreme to comment this way, but it's true. When Grif sees food, he wants it and he wants it now. Do you know any kids that like salad? Fresh fruit and vegetables are not on the list of foods of many kids. And these foods are Griffin's list of 'Foods to avoid.'One excuse comes to mind when you see a reaction like this; it must be the medication.
When Griffin does not get to have the food he wants and sees he gets mad. Not just crying mad, like kicking and screaming mad. It must be the medication. And when he is up late crying for no particular reason and he just wants mommy or papa to hold him, then it must be the medication. The decadron is scheduled to end this week.
Jon and Gretchen are determined to get through all of 'this.' And another hurdle will take place on Wednesday May 28, Griffin is scheduled to have port-a-cath placed. A small device placed under the skin. It empties into a blood vessel and makes it easier to give chemotherapy and to take blood for tests. He will be in the hospital for same day procedures and he will be given anesthesia. Please continue to pray for Griffin and his family.

Short update

2008-05-19T19:10:00.000-07:00

Hi all, Gretchen wanted to remind everyone that today is the last day to volunteer to become a bone marrow donor. Griffin and his parents are scheduled to meet with a team of oncologists to review Griffin's response to chemotherapy and discuss the next round of chemotherapy for the next five months. This is the second stage of the projected 3 years of Griffin's chemotherapy. Stay tuned for recent pictures and more updates. Please continue to pray for Griffin and his family, and don't forget to comment. Gretchen and Jon check the blog and love to hear from everyone.

All under one roof

2008-05-13T12:24:00.001-07:00

Here is a picture of Griffin at home with all of his siblings. Griffin has been home with his brothers and sisters and everyone is adjusting. Isn't that what everyone has to do? Adjust. Let me give you an example. Griffin is now in his parent's room where his older brother Everest use to reside. Everest now stays with his other brother Hudson and sister, Kailey. On top of Everest's bed is a mound of stuffed animals and bears. Everest likes to nestle into the pile of plush toys when he goes to sleep at night. The plush toys keep Everest feeling safe and secure. Everest is adjusting. Here is another example. Kailey and Hudson are continuing their weekly schedule as planned. What use to be the three younger kids is now only the two. They are adjusting as well. Here is yet another example. Griffin has been experiencing loose stools (bowel movements), to the point that one night he had 7 episodes of the dreaded 'D' (diarrhea). Gretchen brought Griffin to the day hospital/ clinic where he received intravenous fluids. The doctors checked out Griffin's blood work and sent him home the same day. Griffin's body is adjusting to the medications. Gretchen and Jon are continuing to keep the family under one roof and attending to all of the kids different needs. Gretchen and Jon are adjusting. The picture of the family was done this past Sunday. Griffin and the family are standing in front of a poster board that was put together by a majority of triplet moms and their families that live in the Edison Park neighborhood. Gretchen and Jon thank everyone for their show of support and love. Continue to pray for Griffin and his family. Pray for their continuing strength and endurance with all the changes that happen everyday.

Happy Mother's Day

2008-05-11T18:18:00.000-07:00

Early this Sunday morning Gretchen called me...

"Can you please enter a blog to greet my family and friends a Happy Mother's Day from the Maks Family?" she requested. She asked if I could include an excerpt from a letter to her that particularly inspired her. [sigh]...My friend...it is just like her to think about others. She wants to send a Happy Mother's day wish to mothers out there when she her personal life is a hurricane.

In that same conversation where she asked me to blog, she was telling me about the horrible effects to Griffin's little body coming out now from the chemotherapy. Every hour he has a diarrhea episode of the foulest smells. All day, Griffin is in such constant discomfort that he just cries to be held. The other kids are home now and want to reconnect with mommy who was gone for two weeks. In the middle of this, she strategizes about how to establish "normalcy" with the family while giving Griffin the nurturing that he needs. Wow...

Gretchen wanted me to quote from a letter from Janet Bleyl, the founder of Triplet Connection. Janet wrote:

"How would you feel if you lost everything you had but then got it all back again? It is my hope that you will get it all back again and that what you learn in the process would become a miraculous gift in loving and appreciating every single day of your life."

I used to complain about the kids, Gretch told me. The mess, the routines, the cleaning, the bathing. "But give it all back to me now and I would love every minute of it. As long as my Griffin is healthy those days would be pure joy."

I ask God, why my friend? I know that life is about facing trials and no life is without suffering. But it seems that my friend has been through so much already. Why another one Lord? Why Gretchen again?

I know Gretch that you are strong. You are a strong mom. God is with you through this. Through my trials you've been my best friend, my voice of reason, my face of compassion, my fashion police, my political forum, and the companion in my storms. I know you are these things to lots of us because you are a caregiver by nature. And we are here with you Juzee.

This posting is not for blog visitors. But rather, this post is for you Gretch. Friend to friend, sister to sister, mother to mother,

Happy Mother's Day to a mom that I admire.

Stem Cell Drive

2008-05-08T20:52:00.000-07:00

Hi all...this just in from Jon & Gretchen:

Gretchen and Jon would like everybody to know about a Stem Cell Drive to be held next week at Children’s Memorial Hospital, Tues and Wed, May 13-14, from 9:30am to 3pm. The Stem Cell Drive is an important cause because children (and adults) who are like Griffin can benefit from it. In fact, it can be a life-saving gift for those in need. On any given day, 6,000 patients search the National Marrow Donor Program registry for a marrow donor. They are hoping to find a volunteer donor, someone who is willing to help them. Donors with diverse racial or ethnic backgrounds are especially needed.

Fortunately, Griffin’s oncologists do NOT feel that he would need a bone marrow transplant at this time, but it’s sometimes the only option for those whose cancers relapse despite standard treatments.

Joining at the hospital is free. Parking is $4. The drive will be held in the Doctor’s Dining Room inside the cafeteria (on the lower level of the main hospital).

People can also join by going to the National Marrow Donor Program web site: www.marrow.org. Click “Join” under “Become a donor.” Joining is free for the first 10,000 people who join online between May 5 and 19.

Here’s the address to Children’s Memorial’s website for the donor drive: www.childrensmemorial.org/depts/stemcell/bone-marrow-donation.aspx

The coordinator at Children’s Memorial Hospital is Eileen Smyth, who also happens to be one of Gretchen’s friends from Good Counsel High School. For anyone who would like more information, feel free to contact Eileen at 312.802.1152 or esmyth@childrensmemorial.org

GRIFFIN IS IN REMISSION!

2008-05-08T06:34:00.000-07:00

All,

Our prayer is working! Jon and Gretch received a call from Griffin's doctor this morning who reported that Griffin was officially in remission!

What does this mean?
It means that after examination of yesterday's bone marrow, less than 5% of the cancer remains. This confirms that Griffin is an early and a positive responder to the treatment. This puts him in a higher likelihood of 100% cure of leukemia.

PRAISE GOD! OUR PRAYER IS WORKING! ALL THE GLORY TO GOD!

What are the next steps?
Griffin will continue the chemo treatments that will continue for the next three years. The doctor cautioned that they need to be vigilant about killing the cancer or he might relapse, but this is great, great news!

12 hour sneak peek

2008-05-08T00:14:00.000-07:00

7:00AM Griffin has to get up and ready. Today is his first outpatient follow up visit to the doctor at the Children's Memorial Hospital. There is no breakfast in the morning because he has to refrain from eating. His doctors orders are to be NPO. This stands for "Nil Per Os" in Latin, translated "nothing by mouth". Since Griffin's procedure is in the morning he is not allowed anything to eat or drink, due to the fact that he has a higher chance of aspirating during the procedure. This particular morning he does take his crushed decadron medication mixed with a little of liquid. He has to take this through a syringe that his mom has to administer. And believe me he is not agreeable for anything this morning.

7:30Am Griffin is strapped into his car seat for the 15 mile ride to Children's Memorial Hospital. The ride is slow and arduous due to the fact that the Edens Expressway is under construction and only 2 out of 3 lanes are open. Not to mention the fact that rush hour traffic is in full throttle.

8:37AM Griffin and Gretchen take the elevator to the 4Th floor clinic/same day hospital waiting area. Griffin is seven minutes late for his appointment with the Nurse Practitioner Maureen who will take a short history and physical exam. Gretchen and Griffin wait with other parents and their kids in the cramped waiting room. It is here that Griffin is given a packet of coloring pages and a small box of crayons to keep him occupied.

During this part of the day Maureen has to go over the procedures for the day with Gretchen and evaluate the progress of Griffin's health since he has been at home. At this time his vital signs, height, and weight are recorded. After all is said and done Griffin gets to pick a toy out of the 'treasure' box.

9:15AM Griffin and Gretchen are back in the waiting room.

9:20AM Griffin and Gretchen are called into another room off of the waiting area where the blood tests are drawn from the PICC line that resides in Griffin's right arm. At this time a second nurse is also on hand to help assist with the blood draw and keep Griffin occupied while he screams and cries to his mommy(who is holding Griffin) to get him away and out from this room. Additional teaching and information is exchanged between the nurse and Gretchen regarding the maintenance of the PICC line. Griffin receives a sticker. After the blood is drawn, Griffin and Gretchen are back in the waiting room. There are more families present so space is tight, but a empty seats are found side-by-side.

9:30AM Griffin and Gretchen are led down to the 2nd floor procedure suite. Maureen (NP) was able to squeeze Griffin in for a 10:30AM appointment. Original procedure time was 1PM. It is here that Griffin and Gretchen meet the nurses and anesthesiologists who will be present during the procedure and also in the recovery room. More questions are asked about Griffin's history, more vital signs are taken, and Griffin is suppose to get into a gown (but he does not want to). Griffin receives a nebulizing treatment prior to the procedure and a calming medication of versed is given. The versed medication is suppose to help Griffin relax due to the fact that every change in his environment is a disruption in his personal space. (For example, Griffin does not want to change in a hospital gown. He does not want to get out of the stroller. He does not want the television at a level that is closer for him to see. He does not want to take off his socks. He does not want mommy to sit down. He dose not want the doctors or nurses to touch him. He does not want to be at the hospital.) Was this medication for Griffin? or for the benefit of the medical staff? I would say both considering what needs to be done is still too much for Griffin to understand. The medical staff do not want to cause more stress for the patient and yet have to do their job.

10:25AM Griffin is cranky and tired and refuses to watch the personal television set. Griffin miraculously follows his nurse to the procedure room with out a tantrum. (Is the versed kicking in?) Keep in mind this is the only time in the day that Griffin has not cried when asked to do something. Up until this time Griffin has not been agreeable and uncooperative. (C'mon he is 29 months old people, how do you think he should act?). Gretchen waits for Griffin in the patient lounge waiting area down the hall from the procedure/operating room.

11:25AM Gretchen is called back into the recovery room area where Griffin is found very uncooperative. (Let's recap. Griffin has not eaten since dinner. He has had a sip of juice with his medication, woken up from his slumber in the early morning. He arrives at the hospital where his arms legs and chest have been poked, prodded, and assessed. He wakes in a strange room full of strangers after a procedure that causes pain to his right hip and back. He is not able to leave the recovery area for a short time because the nurse has to fully assess his progress after the procedure). By the way, two procedures were performed at the same time, a bone marrow biopsy and spinal tap. No blood transfusion is needed at this time(that would have taken 3-4 hours).

12PM Gretchen and Griffin are allowed to leave the recovery area and go home but not before having to proceed to the garage in the rain to get back in the car.

12:45PM Griffin and Gretchen are back at home and getting ready for lunch. Surprisingly, Griffin eats like he has never seen food.

2PM Griffin pads down to nap for a couple of hours.

4:30Pm Griffin and Gretchen eat dinner.

6PM Griffin takes more medications. And reads a whole basketful of books.

7PM Griffin gets ready for bed.

Throughout the day Griffin's mood is up and then down, which can be caused from the decadron. Griffin is exhibiting high need behaviors one minute then agreeable and sweet-as-pie the next. Almost every answer to questions is "NO" and then sometimes he will be agreeable and does what is asked. Griffin may not communicate with words all the time and he does not fully understand why he has to do some things. Continue to pray for Griffin and his family. The whole family is now under one roof. Getting along with the schedule? Yes in some sorts. Please continue to leave your comments for Gretchen and Jon.

Scheduled tests

2008-05-06T19:58:00.000-07:00

Griffin was able to see his brothers and sister this morning. He was fighting his big brother Everest like nothing has ever happened. Then he walked his big brother to the bus stop. Griffin walks back and forth from TV to TV to watch Blues Clues and Dora and Diego. The home health nurse came by and taught Gretchen how to flush the PICC line and how to record vital signs. Griffin has a few things scheduled for tomorrow. He is on the outpatient schedule for a bone marrow biopsy and spinal tap where the doctors will administer chemotherapy at the same time. The planned time is 11:00AM. In addition blood draws will be obtained and it will be determined if a another blood transfusion will be needed. Please pray for Griffin's fast return as Gretchen will be in the recovery waiting room.

First night at home

2008-05-06T09:24:00.000-07:00

This will be quick but a few things Gretchen wanted me to mention were last night was not what was expected. When the family came home Griffin was tucked into bed despite the cries that he wanted to go back to the hospital and continue wearing a hospital gown. The supplemental freezer in the basement was inadvertently left open and all of the frozen supplies had to be thrown out. A sack of potatoes was left on top of a new opened bag of rice (25lb.), and the potatoes began to spoil, Jon did not want to risk the chance of mold entering the rice, everything was tossed. The computer crashed last night so they were unable to access the internet. And then Griffin woke up crying at 5AM. He slept through the 3AM morphine dose. Tomorrow will be a busy day for Griffin. He has a bone biopsy, spinal tap and blood draws scheduled. More updates to come later.

Dicharge postponed

2008-05-05T06:26:00.000-07:00

Griffin's discharge was postponed yesterday because the home health care agency was unable to provide materials and meds needed at the house. The plan is for the home health care agency to drop off all materials at 4PM, the family should be discharged by 12PM. Griffin is currently in the process of a barium swallow study. Griffin was also moved last night into a shared room. He had to give up his private bed. More updates later.

Update 6:20PM
Griffin and parents finally made it home. Griffin became nauseated and vomitted in the car. Looking forward to a restful night for all. More info to come Gretchen could not talk because she was cleaning Griffin.

Going home!

2008-05-04T08:15:00.000-07:00

Who would not want to be in the comfort and safety of their own home? Being able to play with their toys and counting on predictable outcomes is sought out by the young child. When changes occur in a young child's life it can be hard to transition. Daily schedules and consistent care are key in a child's development. The young child will be able to explore and learn in a setting that is safe and secure.
Okay, so enough with the Child Psych 101, but with the planning of Griffin's bon voyage from 2300 Children's Plaza it is with the hope that Griffin will be able to grow and thrive as he has been before his diagnosis of Leukemia. Many things have changed and daily schedules will be different. Monday tot class with Miss Chris and Miss Amanda, Tuesday play group therapy with Cathy and Corey, Thursday Kindermusik with Miss Caroline, and Nutrition every other Friday is on hold for Griffin. Gretchen and Jon have taken measures in planning the activities of the week and deciding the logistics of household arrangements. It has been comfirmed that Griffin will most likely go home today in the early evening. Part of this plan consists of administering IV pain medication scheduled, oral medication twice daily, and assisting with all activities of daily life (feeding, changing, etc.). Griffin's daily schedule has changed for sure. Gretchen and Jon are learning to incorporate these different activities in Griffin's schedule. The schedule of events are not the same but the goal of creating an atmosphere conducive to Griffin's wellness and development have remained. Knowing Gretchen and Jon and the people that stand firm to help support this family, it will be possible. It may not be easy but Gretchen and Jon will make every effort possible to be sure it is done. Please continue to pray for Griffin and his family.

1 more day at the hospital...

2008-05-03T13:18:00.000-07:00

The latest milestone is to get Griffin home! Everyone is hoping for a discharge tomorrow, Sunday May 3rd, or the day after at the latest.

What is keeping him there? Pain management. The doctors still have Griffey on a morphine IV. And of course he's receiving more chemotherapy.

Of the usual side effects - blood clots, brain swelling, nausea - Griffey has only experienced nausea. And Jon was quick to point out, "No Telly Savales here either." A positive note is that he is starting to get his appetite back and eating a little more.

The Maksen send much love to everyone for the support and the phone calls!

Children and medications- Do they mix?

2008-05-02T06:24:00.000-07:00

Gretchen and Jon continue the planning of Griffin's discharge. They are rearranging furniture at home and taking on an overhaul cleaning of the house. Griffin may possibly go home on Saturday. As of the evening of May 1 (Thursday) Griffin's condition is stable after the placement of his PICC line. Griffin's course of medication include intravenous and oral meds.
Apart from the lines that poke from under his gown inlcuding the IV tubing with fluids, he has a heart monitor attached with sticky pads, a pulse oximetry monitor attached to his big toe (wrapped kind of like a band-aid), and a blood pressure cuff attached to his other lower extremity. Given this situation and probably tired from the day's events and the progressive course of chemotherapy it seemed that all Griffin wanted to do was sleep and not be bothered. But does sleep uninterrupted ever happen when you are a patient in the hospital? In Griffin's case, no. It was time for Griffin to take his scheduled medications and record vital signs. After being turned a couple ways, to access certain parts of his body, Griffin was awake, and he was not happy. When young kids communicate their discomfort, their cry can become so forceful encompassing the whole body to respond with the voice. This thereby did not help in recording his blood pressure. Not to mention his body posturing also indicated to leave him alone. With arms flailing about and verbal communication reaching ear piercing decibels, these are red flags to stop. But would a 29 month old boy have the capacity to understand what the course of action is in this case? You tell me. Did you ever have to give antibiotics or fever reducing medications to your child? Are their any children out there that like the taste of warm, bitter, and gooey looking medications? So what is the plan in this case? Not an easy solution, but none the less a course of action that would include making him swallow all his decadron, allopurinol, prevacid, and tylenol (did I miss anything?). Griffin may have been a bit more agreeable if he was more alert and awake. In the end of it all most of his medications were taken with a little amount being spit out. With a quick diaper and linen change Griffin was back to his slumber probably for another 3-4 hours until the next scheduled task. Check back later for more, and continue to pray for Griffin and his family. Also pray for the nurses who with hearts that break with every cry know that all of this is in the best interest for Griffin.

Update 12:10PM (phone conversation with Jon and Gretchen)

2008-05-01T10:08:00.000-07:00

I just got off the phone with Jon and Gretchen and they are waiting for Griffin to get his PICC line placed in Interventional Radiology. It was revealed to Jon by the anesthesiologist that Griffin had complications with oxygen saturation during the first two procedures (Bone marrow biopsies). So now the doctors will be using another type of drug for anesthesia called Ketamine primarily used for the induction and maintenance of general anesthesia. Gretchen asked to continue to pray for Griffin.

Update on Griffin 3:21PM
Griffin received his PICC line which was placed into the right arm. The procedure was under general anesthesia without any complications. He has taken another dose of oral chemotherapy called decadron. Jon and Gretchen have met with some outpatient oncology team to start planning the outpatient based chemotherapy. Griffin is comfortable and sleeping for now.

Update as of 11:55PM (written for Jon and Gretchen)

2008-04-30T21:32:00.000-07:00

Hi everyone it's me Giselle again, here is a message from Jon and Gretchen. I am typing this up verbatim and so here goes. "We are overwhelmed with all the events that have been happening. The administration of different medications, obtaining blood samples, and the task of replacing the intravenous line has been very difficult to watch. Vincristine, allopurinol, zantac, miripenam, dexamethasone, and miralax are the names of some of the medications. Today there were 6 different times that he was poked and prodded for blood and/or to replace an IV. Each time laboratory samples are needed 3 people have to hold him down from moving. Now the doctors are warning that any secondary infection can be detrimental because Griffin's immune system is suppressed or weakened from the chemotherapy." Gretchen continues to say, "So we are happy for all the support from family and friends, but for right now we are putting a stop to all the visitors to the hospital."

Tomorrow's plan is to have a PICC (Peripherally Inserted Central Catheter) line placed to allow an access for easier administration of medications, obtain blood draws, and to decrease discomfort that Griffin endures with each and every needle stick. The downside to the PICC line is the high risk for infection. In addition, during the induction phase of the chemotherapy, Griffin is at higher risk of developing infections which can be life-threatening.

Jon and Gretchen are now in the planning process to bring Griffin home and are paining to make the decision to keep Griffin quarantined. This is a most probable possibility since Griffin's brothers and sister (Everest, Hudson and Kailey) all have the sniffles. Jon and Gretchen are looking forward to when the whole family can be together along with extended family and friends (Jon and Gretchen and social gatherings; they go hand-in-hand:) but most likely when Griffin's blood counts have improved.

While typing this entry I see the pain and heartache that Jon and Gretchen are experiencing as they make these decisions. They do not want to offend anyone but feel that this is the best decision for Griffin.

Gretchen also requested that I post a special present that was left for Griffin from his Kuya Everest and Nicholas (Everest's classmate). Gretchen and Jon found this on their dining room table. They have not been able to spend as much quality time with Everest, Hudson, and Kailey while Griffin has been in the hospital. Jon and Gretchen have been at Griffin's bedside since day one. The care of Everest, Hudson and Kailey has been placed in the hands of the Grandparents (Marita, Aida, and John). So when Jon and Gretchen do go home to quickly shower, change clothes, and regroup their thoughts the kids are at school during the day or sleeping during the late night hours. Finding this art work waiting for them makes them want to get back to their home and family as soon as possible. That is all for now, more to come tomorrow, so check back later and leave your comments for Jon and Gretchen. Please continue to pray for Griffin and his family. Pray that God will provide them with the wisdom to make the right decisions and the strength to endure the path that has been laid out.

First Chemo Treatment Administered Successfully

2008-04-30T14:00:00.000-07:00

Jon just updated that the doctors were able to get around the IV problem and administered the first chemotherapy treatment successfully. Tonight there is further oral chemotherapy scheduled

Chemotherapy Postponed

2008-04-30T12:48:00.000-07:00

The doctors could not find a vein for them to put a line in. They looked all over. They will have to do a special procedure to get a line in which they will do tomorrow. Chemotherapy is postponed until tomorrow.

Confirmed that Griffin has PreB ALL

2008-04-30T10:53:00.000-07:00

This is the first good news since this whole heart breaking situation has started: doctors confirm that Griffin does have Pre-B ALL-- this is the 80% highly curable Leukemia.

Thank you Lord...

Last night Griffin had a blood transfusion to get his hemoglobin level is up. This was to prepare him for this chemotherapy.

He will start chemotherapy this morning which is mostly an induction phase. The chemotherapy will be administered through Griffin's IV and through pills. These are very toxic chemicals that will kill the tumors and the cancer in his bone marrow. The doctor's tell them that Griffin's only side pain for this induction chemo treatment should be jaw pain.

Assuming Griffin responds well to the chemotherapy, Jon, Gretch and Griffy will go home this Friday, May 2. Everest, Hudsy and Kai-Kai miss Mommy, Daddy, and Griffy dearly. Gretch and Jon have started planning in preparation of taking care of Griffin over the next six months of chemotherapy.

Update from Gretchen as of 12pm

2008-04-30T02:01:00.000-07:00

Hi all it's me Giselle and I talked with Jon and Gretch this afternoon, per Jon, "Our night was great and went well, pretty quiet night switching between bed and chair."
Gretch says "I got to sleep on the bed...Griffin slept with the morphine and then woke up at 8am. Gretchen also continued telling me about the morning, "Today he sat on my lap in the blue chair and ate 1/4 of the blueberry muffin like an apple(prior to this Griffin refused to eat and only with encouragement would he eat a bite or two of buttered noodles or soft cubed carrots).
From the playroom Jon has borrowed a tricycle and Griffin is eyeing it with delight. His pain is still too much to move especially with diaper changes. Gretchen also stated he will eventually walk after chemotherapy starts.
These pictures are from last night, but Gretchen has sent pictures of Griffin from today with big smiles(check back later when Jen posts these pictures). While talking with Gretchen, Griffin had the nurse working over him to prepare another IV line, the nurse was preparing the different sites of his arms with an emla cream(to help numb these areas that she will be accessing with a needle.) His chemotherapy will start today.
Continue to pray for Griffin and the family. Gretchen and Jon continue to check the site and are happy to hear from everyone.

Second Bone Marrow Biopsy Shows Positive Results

2008-04-29T09:24:00.000-07:00

News on the Diagnosis:
The doctors completed Griffin's second bone marrow biopsy and though the official analysis is not yet in, the doctor's said from what the see so far, they are hopeful that Griffin does have Pre-B ALL which is the "better" Leukemia to have. The treatment for this will be about six months of intense chemotherapy which will have lots of bad effects among which are:

-loss of hair on head, eyebrows, eyelashes
-brain bleeds
-swollen face
-sickness

The good news is that this Leukemia is *HIGHLY SURVIVABLE*.
(taken from http://www.bio-medicine.org/medicine-news/Looking-Towards-More-Effective--Leukemia-Treatment--2861-1/)

"Eighty percent of the time childhood acute lymphoblastic leukemia is curable with chemotherapy. The bad news is doctors are not sure why it doesn’t work for the other 20 percent of patients. Now, new research finds it could be because of a small number of genes that are resistant to drugs used to treat the disease."

News on Griffin:
Griffin woke up with sores on his lips and in his mouth. This could be related to the small dose of chemotherapy that the doctors gave him last night. He is recovering from the second bone marrow biopsy operation. Mommy and Griffin watched Blues Clues, Griffin's favorite and he was responding to Mommy's questions:

Who is that?
Notebook

What is that?
Clue

Questions from Family and Friends
Here are Gretchen's answers to questions from family and friends...

How long will you be in the hospital?
We will definitely be here until the end of the week, May 2. After today's analysis of the bone marrow, we will know more about the chemotherapy strategy. The results could dictate that we go back and forth from home to do the treatments. Or this could dictate that we stay here for 5 days of intense therapy and can leave and stay at home for some interval and return and keep doing these rounds. We will find out this evening.

Can we send you flowers?
I believe the hospital is not allowing flowers at this time.

Is there anything we can do?
At this point we cannot request help until we know what our situation will be like. I love to hear the comments. It lifts me up. Very touching.

Are you going to test the other kids for Leukemia?
We are going to get our arms around Griffin's Leukemia then we will circle back to the others.

First Test Results are Inconclusive

2008-04-28T16:53:00.001-07:00

Just spoke to Gretchen on the phone. The bone marrow tests were inconclusive as to what type of Leukemia Griffin has. They will do another bone marrow extraction tomorrow and perform another set of tests. The doctors are leaning towards ALL PreB but they will hold off on the chemotherapy until tomorrow evening.

Griffin is more comfortable because they are now providing intervals of morphine doses. He was even able to enjoy a lollipop.

Gretchen reports that the kids have been divided among the grandparents. It is a big task to take on three kids while the parents are attending to Griffin. Hudson is with Lola Marita. Everest and Kai Kai are with Poppy and Grandma Maks.

Giselle is on her way to the hospital now to provide relief and support.

Please make sure we send words of encouragement and support to Jon, Gretch, and Griffin by adding comments.

Griffin Goes to the Hospital

2008-04-28T11:01:00.000-07:00

Friends and Family,

It has been a devastating week for the Maks Family.

Two days ago, Griffen, the oldest of the Maks Triplets visited his pediatrician because his hip was so painful he could not walk. His pediatrician must have suspected something from the blood tests and immediately sent them to Children's Memorial Hospital. Gretchen thought she was going there to see a Pediatric Orthopedist and that perhaps Griffen had a small fracture on his hip from falling. However, yesterday morning Jon and Gretchen found out that Griffen has Leukemia.

It has been a horrible 48 hours. Griffen cannot sleep and is in so much pain. At 4am this morning to ease his pain the doctors gave him morphine. There is surgery scheduled for this morning for doctor's to extract bone marrow from Griffen's hip bone. The doctor informed us that he will be in even more pain from this procedure. The bone marrow is necessary for testing the type of Leukemia. Chemotherapy is scheduled to begin tonight, once the tests have identified the type of Griffen's Luekemia.

There are three types of Children's Leukemia:(http://www.cancer.org/docroot/CRI/content/CRI_2_4_1X_What_is_childhood_leukemia_24.asp)

* Acute lymphocytic leukemia (ALL, also called acute lymphoblastic leukemia) accounts for about 3 out of 4 cases of childhood leukemia. This leukemia starts from the lymphoid cells in the bone marrow.
* Acute myelogenous leukemia (AML, also called acute myeloid leukemia) accounts for most of the remaining cases. This leukemia starts from the cells that form white blood cells (other than lymphocytes), red blood cells, or platelets.
* Hybrid ( mixed lineage leukemias) are rare. The cells have features of both ALL and AML. They are generally treated like ALL and respond to treatment like ALL.

Many people are asking me how they can help. Can we cook for them? Can we help babysit the other kids? Do they need money? For now, Gretch and Jon are trying to assess the situation. Some Obvious emotions are worry, devastation, fear, and sadness. I think cards and flowers would be awesome. You can call Children's Memorial but please understand if they are not able to talk for too long since they are trying to ease Griffen from his discomfort.

I think the most important thing is to keep Griffen in our prayers.
It says in Exodus 15:26: "...for I am the Lord that healeth thee"

I will be giving a report as often as I can to keep friends and family informed.

Jenny, on behalf of my 2nd family...the Maks Family

PS.

Putting this on the post since its not so obvious in the comment:

All I forgot to mention that these photos are compliments of Giselle Santos. Thanks Giselle for taking the pictures! In the hospital room, Giselle just snaps away for our photo diary of Griffy's victory over this cancer!